Dr Patrick Kierkegaard is interested in supporting the development, implementation, and dissemination of cutting-edge diagnostics and health care services to facilitate the early detection & diagnosis of cancer and optimizing cancer control.
Most of his work applies social science methods to explore issues related to the implementation and utilization of medical technologies as well as the planning, organization, and structuring of healthcare delivery services.
He is committed to using this work to make the healthcare system more patient-centred, reduce healthcare disparities, and improve the fit between new medical technologies, patients, and healthcare professionals.
To adequately address critical issues pertaining to intersectional inequalities, researchers must include patients as equal members of their research teams. This process is known as patient and public involvement (PPI). As important and valuable as PPI is, there is no standard methodology for guiding and measuring collaboration between researchers and patients with regards to addressing intersectional health inequalities.
A few tools to support PPI exist but they are designed for reporting purposes and are limited in scope. They are not designed to assist researchers and patients in addressing intersectional inequalities.
This protocol describes the steps being taken to close this gap by designing a checklist tool that will allow researchers and patients determine to what extent their PPIE activities addresses critical issues relating to intersectional health inequalities.
Multi-stage qualitative study using semi-structured interviews and participatory design focus group workshops across three phases of investigation. First, in-depth interviews will be conducted to understand contextual challenges associated with addressing and reporting intersectional inequalities during PPIE activities. Second, participatory design focus group will be conducted to co-design the new tool. Third, real-world projects will be utilized as case studies to pilot test and refine the new tool. Analysis will be guided by the Behaviour Change Wheel and Health Equity Implementation Framework.
The primary objective of this study are the co-development of a checklist tool that will improve the methodologies used to ensure PPIE activities address intersectional health inequalities. A secondary objective of the tool is to pilot test it to evaluate potential improvements and its adoption into regular PPIE practice.
An important objective of this protocol is to establish a framework for the creation of a checklist tool that will complement existing PPIE report tools to ensure that patients and researchers engage in meaningful PPIE activities throughout the research cycle in order to address intersectional health inequalities.